most of you have read my blogs but today i’m asking for your help
i use a speech aid to talk to my family and friends and surf the web to talk to my friends on twitter and facebook . also email my family in the usa.
i can nolonger move enoght to do what i once did my figers now dont get recognised by my current equipment . i now need to buy a new device. because i cant manage what i have anymore.
the device i need is called
its a special computer you operate with your eyes.
also my carer can still use her figers to add words to my voice soft ware
its costs £2945.00 + vat ( uk) tobii eyemobile
or £10585.00 + vat (uk) tobii i-12 ( plus need eyegaze module)
both of these let me type with my eyes.
but also need software which is from £220.00 to £900.00 depending on the software
when i was 7 years old i never dreamed i lose the use of my hands arms neck and voice
but now over 30 years later
im having to be fed , and have everything done for me
ive managed to learn to draw so i do still have a hobbie and im looking forward to learning to eyegaze draw.
time is running out i would say the best way to think of what my life is like now
is think of stephen hawkin
( he has als , there only one case of als and rsd connected )
i call cp the magnet as im getting additions quiet regualy now.
it makes the dr’s embarrased to hear me joke about the cp magnet!
please help me get this new device before its to late xx
in general do as much as i still can
cerabel pulsey , ( cant walk so i use a power wheelchair)
menere’s disease , ( worse than vertigo)
restless legs ( legs walk at night when im in bed)
esophogeal dysmotility ( swollowing is almost impossible as throat doesnt work so on liqud food)
dyphonia ( 27 feb 2015 i lost my speach completely)
( a very painful condition that means your in constant pain and it burns the effectied limb stops moving)
Arthritus ( i have this everywhere and it stops my movement.)