we are moving
were moving to siansworlds please update and bookmark thank you xx
we are moving
were moving to siansworlds please update and bookmark thank you xx
well its been a difficult end to 2015 . lots of changes and personal stuff
but I have 3 wips ( work in progress)
first is a corner to corner baby blanket
2nd is a care bear
and 3rd is some curtain tie backs
without a voice we have no choice.
without a voice we get talk over and ignored
my last device took 6 months minimum to get
but by the time i got it i could barely use it
due to RSD!
i have no alternative voice device when mine needs fixing
i dont think its fair
it takes lots of red tape to get a aac device
even now there is to much red tape
it shouldnt be this hard to sort this out
i just want to enjoy my life i dont want to loose whats left of me
but i cant offored £14 k for a new device
or the £600 ( ish ) pound private assessment fee.
i cant wait five years i cant type now
touch screens dont like my fingers
i cant always move my body
i talk with my eyes and if you dont no me
well you dont no i’m talking to you.
please dont ignore me !
i help every charity going now its my turn
all i ask is one thing
please help me !
😩😪
most of you have read my blogs but today i’m asking for your help
i use a speech aid to talk to my family and friends and surf the web to talk to my friends on twitter and facebook . also email my family in the usa.
i draw
i can nolonger move enoght to do what i once did my figers now dont get recognised by my current equipment . i now need to buy a new device. because i cant manage what i have anymore.
the device i need is called
tobii eyemobile
its a special computer you operate with your eyes.
also my carer can still use her figers to add words to my voice soft ware
its costs £2945.00 + vat ( uk) tobii eyemobile
or £10585.00 + vat (uk) tobii i-12 ( plus need eyegaze module)
both of these let me type with my eyes.
but also need software which is from £220.00 to £900.00 depending on the software
when i was 7 years old i never dreamed i lose the use of my hands arms neck and voice
but now over 30 years later
im having to be fed , and have everything done for me
ive managed to learn to draw so i do still have a hobbie and im looking forward to learning to eyegaze draw.
time is running out i would say the best way to think of what my life is like now
is think of stephen hawkin
( he has als , there only one case of als and rsd connected )
i call cp the magnet as im getting additions quiet regualy now.
it makes the dr’s embarrased to hear me joke about the cp magnet!
please help me get this new device before its to late xx
in general do as much as i still can
i have
cerabel pulsey , ( cant walk so i use a power wheelchair)
menere’s disease , ( worse than vertigo)
restless legs ( legs walk at night when im in bed)
esophogeal dysmotility ( swollowing is almost impossible as throat doesnt work so on liqud food)
dyphonia ( 27 feb 2015 i lost my speach completely)
Rsd/crps
( a very painful condition that means your in constant pain and it burns the effectied limb stops moving)
Arthritus ( i have this everywhere and it stops my movement.)
there very little awareness about Rsd/crps
but it is a very painful conditon
syntoms include:
burning
swelling
shining skin
skin mottoling
loss of movement
numb of effected limbs
feeling of pins and needles
i have rsd/crps i can tell u it hurts there is no cure , as far as i no im the youngest person to have it.
to carry on using my compter and to help kick rsd/crps in the butt via computer i need to get
a computer i can use with my eyes its called tobii pceye mobile.
this is my fundrasing page link
http://www.gofundme.com/sian-geoff
our target date is august 2015
with my other disabilities it is simalier to als
but mine is different it cimes and goes with out warning but im having more als type attacks which last longer and longer
i need to stay independent , use the computer etc but i cant use my computer which is my speach aid
so im fund rasing and rasing awareness
please help by donating to
http://www.gofundme.com/sian-geoff
will also add a link for rsd/crps charitys
ok this is my new challenge , im learning to knit ( under dr’s orders )
I’m leaning with the help of my friends
each square for the blanket
i am uploading to my face book page and
The art of Knitting Facebook page
and will upload the squares here too
so here goes
issue 1
issue 1 square 2
issue 2
photo coming soon
must admit this is helping my arthritis more than i thought .
it cold but your sitting by the fire crochet hook in hand and about to start that project you were wanting do for your self like for ever.
theres a knock on the door
but your not expecting any one
what do u do
u only have a hook band a very small ball of wool u cant buy any more
you eventually go to the door but no one is there
there is a parcel on the step
and a note
u pick them both up and place the hook and the note in ur pocket.
u sit by the fire again take the note and hook out ur pocket
dear friend , have a wonderful day
enjoy ur gifts
love the yarn fairy xx
the parcel contains every colour of yarn avalible and the some u didn’t no about
Happy New Year
to all our readers.
my 8. new years craft resaloution are
1. Make something for me
2. finally be able to crochet a picture
3. find crochet hooks that suit my needs now.
4. sort craft room so its nice and chilled
5. Finish my projects
6. make a blanket
7. use up some wool before buying more
8 finish current project
well i lost my lion ( brand) hook thats a size 15.mm and others .yep
look every where cant do my project with out it.
it was order along with the others in August ! found the size 15. mm today
in my craft tool box.
one question come to mind
how do you lose a hook that 15.mm and turquoise for that long.
i have no clue either. but it was in my crochet tool box .
now all i need do is find replacements for sizes
e
f
g
h
i
j
k
l
m
n
p
q
s
and then i want to try extreme crochet
A little peep into what made or makes me happy
Celebrating Crochet with a Positive Spin
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